Living with a Stoma

Living with a stoma

Let us help you deal with all aspects of living with a stoma, from those first few weeks after surgery to everyday lifestyle advice, including travel tips, exercise, diet and relationships.

Early days at home

When you are first discharged from hospital you will feel tired and find everyday task, such as having a shower, exhausting. This is normal and will improve over time. You should not need to stay in bed when you get home, but you will need plenty of rest, and should make time for a nap during the day.
You may experience some pain and discomfort initially whilst recovering from your surgery. This is a normal part of recovery and you may need to take regular pain relief. There is no need to suffer!
Avoid tight fitting clothing during this period as your abdomen may be sore and swollen.
It is normal to feel emotional after major surgery, so don’t worry if you have ‘down’ or ‘teary’ days to begin with. Talking to family and friends can be helpful – don’t feel you need to cope alone. Your Stomal Therapy Nurse is there to support you, and there are patient support groups who can help, too.

Don’t be frightened to ask for help.

Changing your stoma bag will be slow at first, but with practice and as you gain confidence, this will become part of your normal daily routine.

Tips for early recovery

It is advisable to go for a short walk daily
You should be able to manage stairs
Spread tasks over the day and rest in between, but remember you are likely to feel more tired as the day goes on
Do not lift anything heavier than a half-full kettle
You will be able to make small light meals
You must not drive in the early days after your surgery because you are still sore and may have restricted movement. Also, certain medication can affect your ability to drive

tips for ongoing recovery

Continue to rest when you get tired
Continue to avoid heavy lifting due to the risk of developing a hernia. If you do need to lift, keep the objects close to your body, bend knees and wear a light support garment. Your Stomal Therapy Nurse will be able to advise you
Household activities such as ironing can be done sitting down
Continue to walk on a daily basis, going further over the week
Avoid stretching up to reach high cupboards
You should be able to drive after 3-6 weeks, depending on your type of surgery but you should check with your insurance company
Continue the abdominal exercises you were taught in hospital